Late Termination in Wichita

Posted on Posted in Induction/L&D, Neural Tube Defects, Spina Bifida, Stories, Termination after 24 weeks, Ventriculomegaly

By Donna My son was my long awaited journey into motherhood. He was my lifeline the day my brother died and I thought the world was ending. He was the glimmer of hope that was offered to family members that horrible week that we had four family members die. He was my everything, and then he was gone. At the end of September 2005, my husband and I found out that we were expecting a child. We were excited to finally start a family. The following week my brother and cousin were killed in a car wreck, then my aunt died from cancer, and my […]

I Wanted Her So Much

Posted on Posted in Agenesis of the Corpus Callosum, Hydrocephalus, Induction/L&D, Stories, Ventriculomegaly

By Alyssa’s Mom We were trying to get pregnant with our first child. When I missed my period I took a pregnancy test but it was negative. I was bummed. I thought for sure I was pregnant as I had felt constant nausea all week long. A few days later my doctor did a blood test. Lo and behold I was pregnant after all. We were absolutely thrilled!  Our baby was due in September and we could not wait. Our first scare in the pregnancy came at nine weeks when I started bleeding. I thought for sure I had lost the baby. The next morning I had an ultrasound scan […]

Life after the storm

Posted on Posted in Hydrocephalus, Multiple Losses, Stories, Ventriculomegaly

By Julie I was unlucky two times. In a row. I had to make a heartbreaking decision to end my son’s life at 21 weeks and terminate a much-wanted pregnancy because of the prognosis of a “best case scenario of the developmental quality of life of a two-month-old.” We were told it was a one in a million occurrence. Five months later, I found myself pregnant again. We were monitored closely: every other week at a perinatologist’s office. And then, week 17, they started to see the same abnormalities. Week 18, diagnosis confirmed. Week 19, second termination. At that point, I couldn’t imagine being happy again […]

What is Ventriculomegaly?

Posted on Posted in Diagnosis Information, Ventriculomegaly

Ventriculomegaly is a condition in which the lateral ventricles of the brain (the fluid-filled spaces) appear larger than normal. It can be detected at the second-trimester ultrasound, and occurs in about one in 1,000 births. There is not a singular cause of ventriculomegaly, but it is common in conjunction with hydrocephalus and several fetal abnormalities. Ventriculomegaly is considered “isolated” when there are no other anomalies present (other than those that are a result of the ventrical enlargement). When ventriculomegaly exceeds 15 mm, there are often other abnormalities present, such as neural tube defects, Chiari malformations, Dandy Walker syndrome, agenesis of the corpus callosum, hydrocephalus or […]

My Interrupted Pregnancies

Posted on Posted in D&E, Hydrocephalus, Induction/L&D, Multiple Losses, Other Diagnoses, Stories, Ventriculomegaly

 By Julie In my gut, I knew something wasn’t right with my second pregnancy. The pregnancy test had a faint line and I didn’t have the severe morning sickness that I had previously. At 6 weeks, 2 days gestation I had an ultrasound and saw the heartbeat, but they wanted to see me two weeks later. When I returned, there was no heartbeat, and the baby measured only 6 weeks, 3 days—I had miscarried. Many of my friends and family had been through a miscarriage, and while it was emotionally hard, I figured that it was somewhat par for the course. Once my cycle came back, we decided to try […]