Ethan’s Story

Posted on Posted in Congenital Heart Defects, D&E, Religious Perspectives, Stories, Trisomy 21 (Down syndrome)

By C.J. This is Ethan’s story–my youngest son. It started out much like I thought for a third pregnancy. I have two healthy children, a girl, age five, and a boy, age three. I was sick with morning/all day sickness. When you are that sick and you have been through it twice before, it is hard to be too excited, but my husband and children were over the moon about the new baby. My son kept looking at my stomach and saying “is it getting bigger?” While my daughter began kissing my growing belly and writing “I love you” cards for her new sibling. My […]

Hope Crushed

Posted on Posted in Stories, Trisomy 21 (Down syndrome)

By J.G. After having a miscarriage at eight weeks this year, I found out I was pregnant again at around six weeks. I was excited and nervous to be pregnant so soon after miscarrying. I made it past the eight weeks scary zone and I had my first appointment with the genetics counselor at 12 weeks to determine any risks associated with my pregnancy. We opted to do an ultrasound and the new cell-free fetal DNA (Panorama) testing. The ultrasound looked wonderful and showed no soft markers for any kind of birth defects. I was excited that everything looked good and I was almost on […]

Our Baby Boy

Posted on Posted in D&E, Stories, Trisomy 21 (Down syndrome)

By J.D. I have polycystic ovary syndrome (PCOS), so when my husband and I decided to try getting pregnant earlier this year, we had a difficult time finding that “window” due to my irregular cycles. We were referred to a fertility office where we started months of testing to narrow down the issue and come up with a plan. My husband tested fine and it was determined that I had plenty of eggs, they just weren’t ovulating themselves. We would do ovulation induction with medications and timed intercourse. Our first cycle worked! I couldn’t believe it. I stared at the stick in pure disbelief then […]

Will You Let Her Go?

Posted on Posted in D&E, Stories, Trisomy 18 (Edward's syndrome)

By Vanessa Spiritoso When I was pregnant with baby number three, I wasn’t excited but I wasn’t unhappy. My mind was preoccupied with running after my two boys who are under the age of five. I really didn’t have time to focus on baby number three. Some days I felt pregnant, but most days I did not. I remember telling my family that I knew I was pregnant but it didn’t feel like it. I even remember talking to my baby asking, “Are you in there?” because I didn’t feel like I felt when I was pregnant with the boys. I didn’t have that aggressive […]

Chloe Fay

Posted on Posted in Hydrocephalus, Induction/L&D, Neural Tube Defects, Spina Bifida, Stories

By Zena Mason To the newly bereaved parent: please know that you’re not alone. I want to share my story of medical termination in Australia. This was extremely hard to write and share. In a world full of supportive people we have certainly felt alone because it’s so taboo and people are scared to talk about anything to do with the loss of a child. Unfortunately, we live in a world where we as humans are judged for what shoes we wear, what house we live in and whether we like boys or girls, so when we had to make a heart-wrenching choice it became apparent […]

There are No Words

Posted on Posted in Hydrocephalus, Induction/L&D, Neural Tube Defects, Spina Bifida, Stories

By Holly “There are no words.” This was a response I received from one of my childhood friends when I told her about losing Heath. I had received so many other responses such as “I am so sorry for your loss” or “we are praying for you and your family” etc. and while those responses were nice, “there are no words” was exactly the response I needed at the time. You see, there are no words when someone loses a baby. There are no words when you receive the life-changing ultrasound results. There are no words when you are faced with a decision to terminate. […]

Late Termination in Wichita

Posted on Posted in Induction/L&D, Neural Tube Defects, Spina Bifida, Stories, Termination after 24 weeks, Ventriculomegaly

By Donna My son was my long awaited journey into motherhood. He was my lifeline the day my brother died and I thought the world was ending. He was the glimmer of hope that was offered to family members that horrible week that we had four family members die. He was my everything, and then he was gone. At the end of September 2005, my husband and I found out that we were expecting a child. We were excited to finally start a family. The following week my brother and cousin were killed in a car wreck, then my aunt died from cancer, and my […]

Real, not hypothetical

Posted on Posted in D&E, Stories, Trisomy 21 (Down syndrome)

by R.S. I was living abroad with my spouse and our 2-year-old daughter when I found out I was pregnant. It was an enormous but welcome surprise. I have polycystic ovarian syndrome and it had taken over two years of fertility treatments and two rounds of IVF to conceive our daughter. I didn’t think I could get pregnant spontaneously, and had planned on doing IVF once we moved back to the US a couple of years later. I wanted to be happy, to celebrate the pregnancy, but it just seemed too good to be true. So at first I anticipated miscarriage. Every time I used […]