There are No Words

Posted on Posted in Hydrocephalus, Induction/L&D, Neural Tube Defects, Spina Bifida, Stories

By Holly “There are no words.” This was a response I received from one of my childhood friends when I told her about losing Heath. I had received so many other responses such as “I am so sorry for your loss” or “we are praying for you and your family” etc. and while those responses were nice, “there are no words” was exactly the response I needed at the time. You see, there are no words when someone loses a baby. There are no words when you receive the life-changing ultrasound results. There are no words when you are faced with a decision to terminate. […]

Our Sweet Simon

Posted on Posted in Posterior Urethral Valves (PUV)

By Michele I found out I was pregnant with my third child in May 2016. I have always wanted a big family so this was great news. My kids (4 and 9 years old) were very excited. My son wanted a brother and my daughter wanted a sister, of course. My son talked about showing him all kinds of “boy” things. My daughter talked about helping take care of the baby, even helping change diapers. This pregnancy was different from the others—which is normal—but I kept feeling like something wasn’t right. I had some spotting off and on. I also had fevers every day during the […]

Late Termination in Wichita

Posted on Posted in Induction/L&D, Neural Tube Defects, Spina Bifida, Stories, Termination after 24 weeks, Ventriculomegaly

By Donna My son was my long awaited journey into motherhood. He was my lifeline the day my brother died and I thought the world was ending. He was the glimmer of hope that was offered to family members that horrible week that we had four family members die. He was my everything, and then he was gone. At the end of September 2005, my husband and I found out that we were expecting a child. We were excited to finally start a family. The following week my brother and cousin were killed in a car wreck, then my aunt died from cancer, and my […]