mosiac trisomy 13 - what nobody tells you

What Nobody Tells You

Posted on Posted in Hypoplastic Left Heart Syndrome, Trisomy 13 (Patau syndrome)

Prenatal Diagnosis: Mosiac Trisomy 13 and HLHS Nobody tells you when you’re trying to get pregnant that things can go wrong and it could end badly. By Gina McGarey I didn’t want kids until I was in my 30s. This past summer we started trying. Fast forward about 4 months and we found out I was pregnant. We were both super excited and planned all of these different ways to tell our parents, siblings, and friends (I have some amazing videos of us telling most of them). This would be the first grandchild for all of our parents and the first great-grandchild for half of […]

Mariana

Posted on Posted in Fetal Hydrops, Induction/L&D, Stories, Trisomy 21 (Down syndrome)

By Andrea My husband and I were excited when we found out that I was pregnant. We have a three-year-old daughter and this baby would have been born around the same time our daughter started kindergarten. Everything happened as planned; it was a very expected pregnancy. The first ultrasound was at 12 weeks. I wasn’t very concerned. It was probably because we didn’t have any problems during our first pregnancy and our daughter was born healthy. Even though my husband really wanted to be there, he couldn’t make it for that ultrasound. Maybe that wasn’t such a bad thing. I completely broke down when I […]

Malachi, My Angel

Posted on Posted in Neural Tube Defects, Religious Perspectives, Spina Bifida

by S.A. The day you realise your world as you know it has changed forever is a startling one. One that hits you like a ton of bricks. One when you question how the rest of the world is able to keep moving and functioning, oblivious to your the pain and suffering. That fateful day for me was the 10th November 2016. I received the news that my expectant child, a precious baby boy, had an open spina bifida and Arnold Chari Malformation Type 2. Even as those words roll out my mouth now, I still cannot believe that this was and is my reality, […]

Ethan’s Story

Posted on Posted in Congenital Heart Defects, D&E, Religious Perspectives, Stories, Trisomy 21 (Down syndrome)

By C.J. This is Ethan’s story–my youngest son. It started out much like I thought for a third pregnancy. I have two healthy children, a girl, age five, and a boy, age three. I was sick with morning/all day sickness. When you are that sick and you have been through it twice before, it is hard to be too excited, but my husband and children were over the moon about the new baby. My son kept looking at my stomach and saying “is it getting bigger?” While my daughter began kissing my growing belly and writing “I love you” cards for her new sibling. My […]

Our Baby Boy

Posted on Posted in D&E, Stories, Trisomy 21 (Down syndrome)

By J.D. I have polycystic ovary syndrome (PCOS), so when my husband and I decided to try getting pregnant earlier this year, we had a difficult time finding that “window” due to my irregular cycles. We were referred to a fertility office where we started months of testing to narrow down the issue and come up with a plan. My husband tested fine and it was determined that I had plenty of eggs, they just weren’t ovulating themselves. We would do ovulation induction with medications and timed intercourse. Our first cycle worked! I couldn’t believe it. I stared at the stick in pure disbelief then […]

A Heartbreaking Journey

Posted on Posted in Trisomy 18 (Edward's syndrome)

By A.R. Our angel Stella Marie was diagnosed with Trisomy 18. This is the story of my heartbreaking journey as I fought against my own faith. I always knew I wanted to get married, have a big family, be able to stay home with my children and then go back to work when they were in school. That was my dream. And although my life took many detours, last October I thought, boy my dreams are all coming true, I am so blessed. I was married to a wonderful man, I had three children ages fourteen, three and one, and I was staying home with […]

Will You Let Her Go?

Posted on Posted in D&E, Stories, Trisomy 18 (Edward's syndrome)

By Vanessa Spiritoso When I was pregnant with baby number three, I wasn’t excited but I wasn’t unhappy. My mind was preoccupied with running after my two boys who are under the age of five. I really didn’t have time to focus on baby number three. Some days I felt pregnant, but most days I did not. I remember telling my family that I knew I was pregnant but it didn’t feel like it. I even remember talking to my baby asking, “Are you in there?” because I didn’t feel like I felt when I was pregnant with the boys. I didn’t have that aggressive […]

Real, not hypothetical

Posted on Posted in D&E, Stories, Trisomy 21 (Down syndrome)

by R.S. I was living abroad with my spouse and our 2-year-old daughter when I found out I was pregnant. It was an enormous but welcome surprise. I have polycystic ovarian syndrome and it had taken over two years of fertility treatments and two rounds of IVF to conceive our daughter. I didn’t think I could get pregnant spontaneously, and had planned on doing IVF once we moved back to the US a couple of years later. I wanted to be happy, to celebrate the pregnancy, but it just seemed too good to be true. So at first I anticipated miscarriage. Every time I used […]

Q&A: Who The Hell Are You?

Posted on Posted in Opinion, Q&A

Have a question for Ending a Wanted Pregnancy? Email us. QUESTION Who The Hell Are You To Tell People Its Ok To End Life. You Are Not The LIVING GOD! and if you were to read the Bible You Would Know That. How Does Anyone Know If That Baby Was Born and Was A Miracle Baby??? Stop Trying To Out Do What God Has For Us… Doctors Don’t Always Know What Is Good For Us, Now Do They???? Pray as God Does Answer Our Prayers…He Always Has A Plan For US…. ANSWER That’s a complicated question so I’m going to break it down and answer […]