From My Side of the Picket Sign

Posted on Posted in Anencephaly, Neural Tube Defects, Opinion, Stories

By Carissa Waldner I see you day after day holding up the sign that continually haunts me, “Babies killed here.” I watch as your supporters show up on the weekends and stand with you, holding pictures of fetuses, showcasing the number of days and hours it takes for a human heart to start beating. Your eyes are cold and judgmental. They pierce through me as I drive by. I avert mine day after day, knowing how you’d feel if you knew my story. Every morning I drive past you with two children in the backseat of my minivan. I spend my days making lunches, driving […]

Hope Crushed

Posted on Posted in Stories, Trisomy 21 (Down syndrome)

By J.G. After having a miscarriage at eight weeks this year, I found out I was pregnant again at around six weeks. I was excited and nervous to be pregnant so soon after miscarrying. I made it past the eight weeks scary zone and I had my first appointment with the genetics counselor at 12 weeks to determine any risks associated with my pregnancy. We opted to do an ultrasound and the new cell-free fetal DNA (Panorama) testing. The ultrasound looked wonderful and showed no soft markers for any kind of birth defects. I was excited that everything looked good and I was almost on […]

A Heartbreaking Journey

Posted on Posted in Trisomy 18 (Edward's syndrome)

By A.R. Our angel Stella Marie was diagnosed with Trisomy 18. This is the story of my heartbreaking journey as I fought against my own faith. I always knew I wanted to get married, have a big family, be able to stay home with my children and then go back to work when they were in school. That was my dream. And although my life took many detours, last October I thought, boy my dreams are all coming true, I am so blessed. I was married to a wonderful man, I had three children ages fourteen, three and one, and I was staying home with […]

Chloe Fay

Posted on Posted in Hydrocephalus, Induction/L&D, Neural Tube Defects, Spina Bifida, Stories

By Zena Mason To the newly bereaved parent: please know that you’re not alone. I want to share my story of medical termination in Australia. This was extremely hard to write and share. In a world full of supportive people we have certainly felt alone because it’s so taboo and people are scared to talk about anything to do with the loss of a child. Unfortunately, we live in a world where we as humans are judged for what shoes we wear, what house we live in and whether we like boys or girls, so when we had to make a heart-wrenching choice it became apparent […]

Late Termination in Wichita

Posted on Posted in Induction/L&D, Neural Tube Defects, Spina Bifida, Stories, Termination after 24 weeks, Ventriculomegaly

By Donna My son was my long awaited journey into motherhood. He was my lifeline the day my brother died and I thought the world was ending. He was the glimmer of hope that was offered to family members that horrible week that we had four family members die. He was my everything, and then he was gone. At the end of September 2005, my husband and I found out that we were expecting a child. We were excited to finally start a family. The following week my brother and cousin were killed in a car wreck, then my aunt died from cancer, and my […]

Real, not hypothetical

Posted on Posted in D&E, Stories, Trisomy 21 (Down syndrome)

by R.S. I was living abroad with my spouse and our 2-year-old daughter when I found out I was pregnant. It was an enormous but welcome surprise. I have polycystic ovarian syndrome and it had taken over two years of fertility treatments and two rounds of IVF to conceive our daughter. I didn’t think I could get pregnant spontaneously, and had planned on doing IVF once we moved back to the US a couple of years later. I wanted to be happy, to celebrate the pregnancy, but it just seemed too good to be true. So at first I anticipated miscarriage. Every time I used […]

Willow, Our “Back to the Future” Baby

Posted on Posted in Hypoplastic Left Heart Syndrome, Induction/L&D, Stories

By Mrs. E. Getting the News I was so excited when I saw that my pregnancy test was positive! It was the weekend before Valentine’s day, and I decided to surprise my husband with a “My First Jaguars Football Book” which I’d bought a long time ago and saved just for this day. Giddy and bursting with happiness, I gift wrapped the book along with my positive pregnancy test. When he got home from work I said I had an early Valentine’s gift for him. He seemed a little confused by his early gift. I was smiling ear to ear. He opened the gift and eyed the test stick, still baffled. Before he […]

Survival & Strengthening

Posted on Posted in Induction/L&D, Multiple Losses, Stories, Trisomy 18 (Edward's syndrome), Trisomy 21 (Down syndrome)

By Anne Mellinger-Birdsong Survived is used in the sense of being stronger for having accomplished a major challenge. I have survived The death of my mother Before I was married Before I had children. I have survived The loss of 3 babies Much wanted and much loved, And that has changed me more Than anything else that ever happened. I have survived The questions and harangues From people who didn’t understand Or flat out disagreed With our decision to induce labor When we found out our baby had Down syndrome (Trisomy 21). Who didn’t know all the medical problems that go with Down syndrome Who […]

Not Written in the Stars

Posted on Posted in Induction/L&D, Stories, Termination after 24 weeks

By R.M. Two years ago we were expecting our third child. After a missed miscarriage at 13 weeks earlier in the year, we had gotten through what we thought was the risky part. As we inched toward our third trimester, we were excited and a little nervous to bring another baby into our lives. The 20-week ultrasound turned everything upside down. I noticed it right away on the screen:  A large, dark spot in the baby’s brain.  We were told to call our midwife. She said it may be nothing, or a cyst, or an aneurism.  We saw a specialist who told us it was a brain […]