Anencephaly

My Out-of-State Abortion

Posted on

A Mother in Mississippi My husband and I already had a beautiful little girl when we conceived our second child. We were very excited about the pregnancy, and told everyone. I never dreamed that pregnancy would end at an abortion clinic in another state. The day of the ultrasound where we were to find out the sex of the baby finally came. All we thought about was whether we’d be having a little girl or a little boy. I don’t think it ever occurred to us that this would turn out to be the worst day ever. I knew something must be wrong because the […]

Induction/L&D

Mathew: A Hard Choice

Posted on

By Wendy I worried throughout this pregnancy. I hadn’t even bought anything for the baby, and felt awkward telling people I was pregnant again because I was sure it was all going to go wrong. At 22 weeks, my worst nightmare came true. It was the day of my anomaly scan. I really didn’t want to go as I kept thinking something awful was going to happen. The technician kept measuring and re-measuring this funny shape on my babies spine. Then she looked at the skull, and I thought, That just doesn’t look right—having two other children, I knew how it should have looked. I tried to […]

D&E

I Know I Made The Right Decision

Posted on

Grateful in NYC I was told about this web site by a sister-in-law of a very close friend. Several years ago, she found out that her daughter had severe abnormalities and needed to terminate her pregnancy. I remember how upset and crushed she was, and I could never imagine what she was going through. Then it happened to me. At 16 weeks, I went to the ob/gyn for a regular check up. The doctor recommended that I take the triple screen test. He said that if something was wrong, I would be contacted within two weeks. After almost two weeks, we had not heard anything, […]

Hydrocephalus

The Slim Chance of a Miracle

Posted on

By Lena When I first found out I was pregnant, I was scared and confused. But after a lot of thought, the idea of a baby was wonderful. Before long I was swimming in books, magazines and web sites about babies, parenting and pregnancy. At 16 weeks, my quad screen test results came back indicating abnormalities. An ultrasound determined the baby was a boy, and I immediately named him Julian. That ultrasound also determined that he had a severe case of hydrocephalus. My reaction was disbelief. I had to get a second second opinion. I made an appointment with one of the best known maternal fetal medicine specialists in […]

Anencephaly

Saying Hello and Goodbye

Posted on

By Karen Our story begins in the summertime, when my husband and I, who already had wonderful 3-year-old son called Matthew, decided we would try for another child. I stopped my contraceptive pill and became pregnant in only three weeks. We were amazed because it had taken almost two years for us to conceived Matty. We were so delighted, I wanted to shout it from the rooftops. We told our close family members immediately, and mentioned to Matty that he had a little brother or sister on the way. During the first 14 weeks of my pregnancy I suffered with awful morning sickness and tiredness. My bump appeared very quickly, something […]

Spina Bifida

My Pregnancy After Loss

Posted on

By Gracie’s Mommy My Gracie was my first pregnancy. I had so many hopes, dreams, and wants all tied up in her. She was going to give my life meaning and bring my husband and I even closer than we had ever been before. She was going to make me a mother, something I didn’t know I wanted so deeply. The day we found out Gracie was not okay, all of my dreams for her and us came crashing down. I’ve never been so sorrowful in my life. Choosing to let her go without ever meeting her is a choice that I will carry with […]

Neural Tube Defects

Red State Blues

Posted on

By Gracie’s Mommy I used to be a registered Republican, not because I completely identified with their ideals, but because I identified with them fiscally. Money. Money was important to me. I watched my dad work very hard to keep his employees employed in his small construction company while he took home less than half of his earnings. He struggled to pay his mortgage on a small three-bedroom house and to support his family while his employees bought new cars and went on vacations. That wasn’t fair to me, so when I turned 18 I registered as a Republican and voted Republican. I have never […]

Hydrocephalus

Life after the storm

Posted on

By Julie I was unlucky two times. In a row. I had to make a heartbreaking decision to end my son’s life at 21 weeks and terminate a much-wanted pregnancy because of the prognosis of a “best case scenario of the developmental quality of life of a two-month-old.” We were told it was a one in a million occurrence. Five months later, I found myself pregnant again. We were monitored closely: every other week at a perinatologist’s office. And then, week 17, they started to see the same abnormalities. Week 18, diagnosis confirmed. Week 19, second termination. At that point, I couldn’t imagine being happy again […]

Diagnosis Information

What is Spina Bifida?

Posted on

The neural tube is embryonic tissue from which the brain and spinal cord develop. Failure to close can result in serious birth defects including spina bifida. There are three main types of spina bifida: spina bifida occulta, meningocele and myelomeningocele. Spina bifida occulta is the most common form and the mildest. One or more vertebrae are malformed and are usually covered by a layer of skin. This form of spina bifida rarely causes disability. Meningocele is where the spinal cord develops normally but the meninges (the protective covering around the brain and spinal cord) protrude from a spinal opening. The protuberances may or may not […]