Category: Skeletal Dysplasia

Skeletal dysplasia - I decided that the only thing worse than ending the pregnancy would be to continue it. I felt his kicks and I didn’t want to say goodbye. I loved him. I wanted desperately to keep him safe and warm inside me. It just wasn’t possible. I’ve now accepted that.

Acceptance

Posted on gracePosted in Religious Perspectives, Skeletal Dysplasia, Stories

  Looking back now, I realize how naïve I was. by T.T. In a week, we will be marking one year since we said goodbye, and I wanted to reflect upon it all. It took nearly nine months for me to even start to come to terms with what happened to our family in the last year, and the decisions we made. It led to a new phase of tears, but it felt somewhat different than in the early days. For a long time, I struggled to even allow myself to grieve the loss of our sweet baby, Daniel, because of the massive guilt I […]

The Story of Alexandra

Posted on gracePosted in Induction/L&D, Skeletal Dysplasia, Stories

By Catherine I am writing this to share a recent pain suffered by my husband and I, hoping that our story can be told to others like us. That those who have had to make the worst choice any parent could be faced with would know that they’re not alone and that they don’t have to feel like they’ve done anything wrong. I was 21 weeks pregnant with our first child when a routine ultrasound gave our doctor some concerns and we were referred to a specialist. I went to a geneticist. There, I was told that my baby, a girl, had a very rare, […]