Termination for spina bifida and chiari malformation

My Sweet Cami

Posted on Posted in D&E, Neural Tube Defects, Spina Bifida, Stories

“I decided to make her baby book and have a necklace made with her would-be birthstone and the letter ‘C’ “ By Megan December 15th was a great day for my husband and I. We heard our daughter’s heartbeat for the first time and my husband was accepted to the police academy all on the same day. Life couldn’t get any better. Then in February we went in for the 20-week ultrasound. The tech was very cold and barely spoke as she took 70 images of our baby, measuring every inch. We figured this was routine and asked if we could know the gender. She […]

Spina bifida - I received the news that my expectant child, a precious baby boy, had an open spina bifida and Arnold Chari Malformation Type 2. Even as those words roll out my mouth now, I still cannot believe that this was and is my reality, exactly a month ago today.

Malachi, My Angel

Posted on Posted in Neural Tube Defects, Religious Perspectives, Spina Bifida

My husband bought a beautiful bonsai tree as a memento to remember Malachi by and to keep amongst us as a family. I take care of it as I would have taken care of him. by S.A. The day you realise your world as you know it has changed forever is a startling one. One that hits you like a ton of bricks. One when you question how the rest of the world is able to keep moving and functioning, oblivious to your the pain and suffering. That fateful day for me was the 10th November 2016. I received the news that my expectant child, […]

Rage Over Restrictions

Posted on Posted in D&E, Hydrocephalus, Neural Tube Defects, Spina Bifida

By H. R. The pregnancy was very normal and everything seemed to be going fine. I had the free-cell DNA test and that came back normal, so didn’t feel the need for any second trimester screenings. I do sometimes regret that I didn’t have the second trimester screenings as they might have let me get this information sooner, and maybe the termination would have been easier physically. But I don’t know that, so I’ve had to let that regret go along with so many other regrets as I work through this grieving process. The 20 week level II anatomy scan at the perinatologist’s took a long […]