Rage Over Restrictions

Posted on Posted in D&E, Hydrocephalus, Neural Tube Defects, Spina Bifida

By H. R. The pregnancy was very normal and everything seemed to be going fine. I had the free-cell DNA test and that came back normal, so didn’t feel the need for any second trimester screenings. I do sometimes regret that I didn’t have the second trimester screenings as they might have let me get this information sooner, and maybe the termination would have been easier physically. But I don’t know that, so I’ve had to let that regret go along with so many other regrets as I work through this grieving process. The 20 week level II anatomy scan at the perinatologist’s took a long […]

Lethal Anomalies

Posted on Posted in arthrogryposis, D&C, Stories

By Marie In June of 2014, my husband and I found that our baby had a condition that was incompatible with life: arthrogryposis multiples congenita. This website helped me feel less alone during the weeks that followed. I’m sharing our story in hopes that it may help someone else experiencing a similar situation. That horrible Wednesday had started out great. My two year old daughter had an allergy appointment and, unlike her older brother, her tests came back with no allergies.  No more Epipens! I dropped the kids off at my mom’s before heading off to the clinic for my 12-week ultrasound appointment. Although our OBGYN had picked up a […]