Skeletal Dysplasia

Dads Hurt Too – Talk About It

Posted on
Dads hurt too; talk about it

It never crossed my mind as a possibility that my wife and I were not going to have this baby. We did everything right. We downloaded the apps, watched the foods we ate, had regular doctor visits, exercised regularly (but not too much), did all of the genetic screenings, even refrained from letting the news spread until we crossed the first-trimester milestone where miscarriage rates are higher.

Neural Tube Defects

Daddy’s Shoes

Posted on
Severe spina bifida - Daddy's shoes - "Our gender reveal party was canceled because of the news of severe spina bifida that we got from the specialist. The crushing feeling still haunts me."

We called several specialists around the country and Dana spent an entire day on the phone with the four big players in the fetal surgery specialty. In some cases, they can do surgery on the baby while still in-utero. All the specialists looked at our case of severe spina bifida and gave our son bleak prognoses.