Spina bifida - I received the news that my expectant child, a precious baby boy, had an open spina bifida and Arnold Chari Malformation Type 2. Even as those words roll out my mouth now, I still cannot believe that this was and is my reality, exactly a month ago today.

Malachi, My Angel

Posted on Posted in Neural Tube Defects, Religious Perspectives, Spina Bifida

My husband bought a beautiful bonsai tree as a memento to remember Malachi by and to keep amongst us as a family. I take care of it as I would have taken care of him. by S.A. The day you realise your world as you know it has changed forever is a startling one. One that hits you like a ton of bricks. One when you question how the rest of the world is able to keep moving and functioning, oblivious to your the pain and suffering. That fateful day for me was the 10th November 2016. I received the news that my expectant child, […]

Trisomy 21 - He said my baby would never be a special Olympian and would need immediate, emergency heart and bowel surgery. And that was if the baby made it to term.

Ethan’s Story

Posted on Posted in Congenital Heart Defects, D&E, Religious Perspectives, Stories, Trisomy 21 (Down syndrome)

God met me where I was. While He didn’t give me the miracle I had hoped for, the one I had prayed for, miracles came in other ways, through my friends, family, and the nurses and doctors taking care of me. By C.J. This is Ethan’s story–my youngest son. It started out much like I thought for a third pregnancy. I have two healthy children, a girl, age five, and a boy, age three. I was sick with morning/all day sickness. When you are that sick and you have been through it twice before, it is hard to be too excited, but my husband and […]