Hypoplastic Left Heart Syndrome

Willow, Our “Back to the Future” Baby

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By Mrs. E. Getting the News I was so excited when I saw that my pregnancy test was positive! It was the weekend before Valentine’s day, and I decided to surprise my husband with a “My First Jaguars Football Book” which I’d bought a long time ago and saved just for this day. Giddy and bursting with happiness, I gift wrapped the book along with my positive pregnancy test. When he got home from work I said I had an early Valentine’s gift for him. He seemed a little confused by his early gift. I was smiling ear to ear. He opened the gift and eyed the test stick, still baffled. Before he […]

Induction/L&D

Survival & Strengthening

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By Anne Mellinger-Birdsong Survived is used in the sense of being stronger for having accomplished a major challenge. I have survived The death of my mother Before I was married Before I had children. I have survived The loss of 3 babies Much wanted and much loved, And that has changed me more Than anything else that ever happened. I have survived The questions and harangues From people who didn’t understand Or flat out disagreed With our decision to induce labor When we found out our baby had Down syndrome (Trisomy 21). Who didn’t know all the medical problems that go with Down syndrome Who […]

Induction/L&D

Not Written in the Stars

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By R.M. Two years ago we were expecting our third child. After a missed miscarriage at 13 weeks earlier in the year, we had gotten through what we thought was the risky part. As we inched toward our third trimester, we were excited and a little nervous to bring another baby into our lives. The 20-week ultrasound turned everything upside down. I noticed it right away on the screen:  A large, dark spot in the baby’s brain.  We were told to call our midwife. She said it may be nothing, or a cyst, or an aneurism.  We saw a specialist who told us it was a brain […]

Omphalocele

Q&A: Would it have made me a better person?

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Expecting Adam will not make you a better person

What if I had continued the pregnancy? Would my living children grow to become stronger, gentler people? Have a question for Ending a Wanted Pregnancy? Email us. QUESTION I terminated my pregnancy following a poor prenatal diagnosis of omphalocele. Recently, I read a memoir called Expecting Adam by Marsha Beck, the mother of a child with Down syndrome who learned of his condition prenatally and chose to continue her pregnancy. It’s making me wonder if a better person would make a different choice than I did. After reading it, I’ve started to second-guess my decision. What if we’d been more willing to change our priorities? If we’d readjusted our […]

Q&A

Q&A: What are all those acronyms?

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acronyms

Our list of common abbreviations or acronyms should clear up any confusion about the shorthand we use in our private support group Have a question for Ending a Wanted Pregnancy? Email us. QUESTION I’m new to the private support group. While I love reading and relating to everyone’s stories and situations here, there are so many new acronyms, abbreviations, and shorthand that sometimes I get confused. I really want to understand everything. Is there a list of these I can use for reference when I come across an acronym I’ve never seen before? ANSWER We really do use a lot of abbreviations. Many of these may be familiar from […]

D&E

The Worst Day of My Life

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By M.V. I am 37 years old and have a healthy 22 month old boy at home. My first pregnancy was a breeze, and I assumed my second one would be as well. At my 12-week ultrasound—which was the day before my birthday— my toddler got fussy so I told my husband to go home with him and that I’d call him after going over the results with my doctor. My doctor walked in and said she had not liked what she saw on the ultrasound, including the absence of nasal bones and a high nuchal fold of 5.2, both indicators of Down syndrome. I was shocked. […]

Congenital Heart Defects

Nova, our shining star

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By A.N. Pregnancy is supposed to be a joyous experience. With a history of two prior miscarriages, we waited until 13 weeks to begin to share the news with people beyond our immediate family. We never did an official announcement but word of mouth travels fast. After 13 weeks, anyone who was in our close circle of friends and family knew we were expecting a little girl. Our family was excited for the addition; my daughter was thrilled that she would have a sister. Nova was our baby’s unofficial name, our shining star. You have big dreams for your baby, before he or she ever graces this earth […]

Artistic Expressions

Q&A: What Songs Touch You?

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Have a question for Ending a Wanted Pregnancy? Email us.  QUESTION What songs touch you in relation to your experience of ending a wanted pregnancy. Please share the artist, song title, a link to a YouTube video and if you like, a few words about how the song connects to your experience/grief/loss or healing. ANSWERS Happy Birthday by Piper and Flipsyde. Flipsyde – Happy Birthday (We The People) Pearl Jam’s Black was the first song that really got to me. I remember sitting in the Target parking lot crying when this came on the radio. “Now my bitter hands cradle broken glass of what was everything. All […]

Induction/L&D

Walks with God

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By R. V. I had always wanted children very much, and went through the beginning of fertility treatments with my first husband. After 10 years, that marriage ended. A few years later, I met the love of my life and current husband. He had two children already, 10 and 12 years old, but agreed to try once more so I could experience the joys of motherhood. Finally at age 40 I got pregnant. There was never a more desired child. At three months I went for an ultrasound. They told me that I needed to come back in a few weeks because they couldn’t get an accurate view […]

Dandy Walker Syndrome

The Soundtrack on Repeat

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By Vanessa There are moments of your life that are burned onto your retina, and the script from the narrative lives within your mind; it’s quality, pristine. That’s how July 23, 2013 lives within me. It plays in the background, providing soundtrack music that is sometimes soft, sometimes so loud that it overwhelms me, and I think it’s it’s July 23, 2013 all over again. The 19 week anatomy scan at Maternal Fetal Medicine that day took almost three hours. I watched it on the screen until the tears overwhelmed me to the point I could no longer see. I closed my eyes and willed the world […]