Not Mild

The Worst Rollercoaster Ride

Posted on Posted in Induction/L&D, Other Diagnoses, Stories

This is Not Mild By Anna As you read this story you might notice that the tone I’ve chosen is a little less conventional than most. This is the way I want to share my story: with a dash of humour, curse words, and sarcasm. Grab a glass of wine, unless you are fortunate enough to be pregnant, then (hiding my resentment and in all seriousness) I am happy for you—non-alcoholic wine sucks so enjoy your water, here is the story of my first pregnancy. Synopsis: I was told baby would survive, then not survive, then survive(!), then not survive…so my full story is long. […]

Grief and beauty after termination for hydrops and cystic hygroma

The Birds Are Still Singing

Posted on Posted in Cystic Hygroma, Fetal Hydrops, Stories

“I asked for those flowers because I wanted a reminder of your life, and your birth that was also your death but yet, it was a birth.” By Sabrina Fletcher This week I should have been entering the third trimester of my second pregnancy. The trimester of “Oh, when are you due?” and of “Oh wow, you’re having a baby!”… and the trimester of maternity tops and stretchy elastic band pants and round round bellies (and other parts). But you, my baby, are not here with me. The air is chilly and wet as I step outside to throw the compost onto the pile in our […]

Skeletal dysplasia - I decided that the only thing worse than ending the pregnancy would be to continue it. I felt his kicks and I didn’t want to say goodbye. I loved him. I wanted desperately to keep him safe and warm inside me. It just wasn’t possible. I’ve now accepted that.

Acceptance

Posted on Posted in Religious Perspectives, Skeletal Dysplasia, Stories

  Looking back now, I realize how naïve I was. by T.T. In a week, we will be marking one year since we said goodbye, and I wanted to reflect upon it all. It took nearly nine months for me to even start to come to terms with what happened to our family in the last year, and the decisions we made. It led to a new phase of tears, but it felt somewhat different than in the early days. For a long time, I struggled to even allow myself to grieve the loss of our sweet baby, Daniel, because of the massive guilt I […]

Late Termination in Wichita

Posted on Posted in Induction/L&D, Neural Tube Defects, Spina Bifida, Stories, Termination after 24 weeks, Ventriculomegaly

By Donna My son was my long awaited journey into motherhood. He was my lifeline the day my brother died and I thought the world was ending. He was the glimmer of hope that was offered to family members that horrible week that we had four family members die. He was my everything, and then he was gone. At the end of September 2005, my husband and I found out that we were expecting a child. We were excited to finally start a family. The following week my brother and cousin were killed in a car wreck, then my aunt died from cancer, and my […]

What is Hydrops Fetalis (Fetal Hydrops)?

Posted on Posted in Diagnoses, Fetal Hydrops

Hydrops fetalis (fetal hydrops) is an abnormal accumulation of fluid in two or more places and is a symptom of an underlying problem with the fetus. Hydrops is typically discovered during an ultrasound in the first or second trimester, and the earlier it is found the worse the prognosis. Non-immune hydrops may indicate congenital heart defects, structural abnormalities, infection, or genetic disorders.It is sometimes associated with too much amniotic fluid (polyhydramnios) and placental edema.   For more information, visit: Medscape—Pediatric Hydrops Fetalis Perinatology—Hydrops Fetalis Children’s Hospital of Wisconsin—Hydrops fetalis/erythroblastosis fetalis   Ending a Wanted Pregnancy stories tagged Fetal Hydrops

What is Wolf-Hirschshorn Syndrome?

Posted on Posted in Stories

Wolf-Hirschhorn syndrome (WHS) is a condition that results when there is a deletion on the short arm of chromosome 4. This missing genetic material results in severe developmental delays and seizures. It is associated with variety of birth defects including microcephaly (small head size), cranial asymmetry, heart defects, curvature of the spine and cleft lip and/or palate. Prognosis depends on what birth defects are present. It is estimated that around 35% of WHS patients die within the first two years of life. Children with WHS often exhibit severe to profound cognitive and physical disabilities.   For more information about Wolf-Hirschshorn Syndrome, visit: Wolf-Hirschorn.org – Wolf-Hirschshorn Syndrome OMIM – Wolf-Hirschchorn Syndrome Medscape – Wolf-Hirschshorn Syndrome […]

What is Twin-to-Twin Transfusion Syndrome (TTTS)?

Posted on Posted in Stories

Twin to twin transfusion syndrome (TTTS) occurs only with identical twins or higher order multiples who share a single placenta. It takes place when there is a connection in the two babies’ blood vessels of their shared placenta. One twin, called the “recipient” has greater blood flow and the other, called the “donor” has inadequate blood flow.  Another name for twin-to-twin transfusion syndrome chronic inter-twin transfusion syndrome. In severe cases the fetuses be of significantly different size; the “recipient” twin may have congestive heart failure and polyhydramnios; the “donor” twin may suffer oligohydramnios. Prenatal treatments and outcomes for TTTS have improved in recent years.   For more information on Twin-to-Twin […]

What are Posterior Urethral Valves (PUV)?

Posted on Posted in Diagnoses, Posterior Urethral Valves (PUV)

Posterior Urethral Valves (PUV) is a congenital defect affecting only male fetuses at a rate of about 1 in 8,000. It involves extra “flaps” of tissue on the urethra that obstruct the bladder. Effects can range from minimal to incompatible with life depending on the severity of the defect. PUV requires long-term management beginning in infancy to prevent deterioration of urinary tracts and bladder dysfunction. Severe cases detected prenatally may involve a fetus that is small for gestational age and lack of amniotic fluid or oligohydramnios which may cause other serious developmental problems.   For more information on Posterior Urethral Valves, visit: Emedicine – Posterior Urethral Valves (PUV) […]

What is Osteogenesis Imperfecta Type II?

Posted on Posted in Osteogenesis Imperfecta

Osteogenesis Imperfecta (OI) results from a lack of collagen and causes very weak bones which are easily fractured. In severe cases (type II) even a fetus in the amniotic sac will have bone fractures as early a 16 weeks gestation. Infants with OI type II are often not viable beyond the first year of life. Severity of OI varies by individual, but symptoms can includes numerous broken bones, loose joints, dental problems, severe curvature of the spine and hearing loss.   For more information on Osteogenesis Imperfecta, visit: Medline Plus – Ostegenesis Imperfecta Genetic Home Reference – Osteogenesis Imperfecta OMIM – Osteogenesis Imperfecta     Ending a Wanted […]

What is Omphalocele?

Posted on Posted in Omphalocele

Omphalocele is an abdominal wall defect which causes the liver, intestines or other organs to develop outside of the body. In the first 6 to 10 weeks of a normal pregnancy, the intestines push out from the abdomen into the umbilical cord but by week 11 the intestine move back into the abdomen. An omphalocele happens when this fails to occur. In a small omphalocele only some of the intestines develop outside of the abdominal wall. But with a large omphalocele many organs may have developed outside of body, protected only by a thin, transparent sac. Infants born with an omphalocele may not develop an abdominal cavity adequate to […]