I Wanted Her So Much

Posted on Posted in Agenesis of the Corpus Callosum, Hydrocephalus, Induction/L&D, Stories, Ventriculomegaly

By Alyssa’s Mom We were trying to get pregnant with our first child. When I missed my period I took a pregnancy test but it was negative. I was bummed. I thought for sure I was pregnant as I had felt constant nausea all week long. A few days later my doctor did a blood test. Lo and behold I was pregnant after all. We were absolutely thrilled!  Our baby was due in September and we could not wait. Our first scare in the pregnancy came at nine weeks when I started bleeding. I thought for sure I had lost the baby. The next morning I had an ultrasound scan […]

Grieving Silently

Posted on Posted in Agenesis of the Corpus Callosum, Induction/L&D, Stories

By A Grieving Mother I knew that I was pregnant with my second child very soon after conception. This enabled me to follow all the recommended health guidelines such as taking extra folic acid and no alcohol.I was over the morning sickness by week five and celebrating a great pregnancy with family and friends. We excitedly chose our baby’s nickname from four weeks and used it daily. By week eighteen, we had chosen a boys name. Because of my advancing age we took up the offer of first trimester nuchal translucency screening. During this process I briefly contemplated what an abnormal result might mean. I […]

Finding Out: Dandy-Walker Syndrome

Posted on Posted in Agenesis of the Corpus Callosum, Other Diagnoses, Stories, Termination after 24 weeks

By Kate C. Originally titled “Dandy Walker Syndrome” and published at Makin’ Babies – Adventures in Family Building. Republished by permission. I went for a reassurance ultrasound yesterday. It was not reassuring. At my fetal survey, much earlier in my pregnancy, they had a very hard time imaging the baby’s brain, and there was a ghost of a brain abnormality on the resulting images. It showed up in some, not in others. I was sent to a bigger, higher-risk hospital for a second opinion where they also had trouble getting their images but saw no sign of any abnormalities and declared my baby healthy and […]

The Clearest Choice

Posted on Posted in Agenesis of the Corpus Callosum, Induction/L&D, Opinion, Termination after 24 weeks

By Kate C. Originally titled “My Story” and published at Makin’ Babies – Adventures in Family Building. Republished by permission. Every time I sit down to write this story, I am immediately overwhelmed. Again and again I stand right back up and walk away. I like to think of my grieving self as a whole room full of women.  Some I like more than others, but they’re all parts of me.  One is sweet and compassionate and wants to reach out to help others who have been through my hell.  Another is a fiery activist with a sharp tongue and a self-righteous sense of justice. […]

What is Agenesis of the Corpus Callosum?

Posted on Posted in Agenesis of the Corpus Callosum, Diagnosis Information

Agenesis of the corpus callosum is the failure of the mid-line portion of the brain to develop. This mid-line allows for the left and right hemispheres to communicate with one another. Agenesis can either be partial or full. The prognosis will depend on the severity and extent of the malformations. Typically, agenesis of the corpus callosum is looked for when other brain malformations are detected by ultrasound, and is done so by a fetal MRI. For further information, visit: University of Maine – What is Agenesis of the Corpus Callosum? NINDS – Agenesis of the Corpus Callosum Fetal Treatment Center – Agenesis of the Corpus […]