Chloe Fay

Posted on Posted in Hydrocephalus, Induction/L&D, Neural Tube Defects, Spina Bifida, Stories

By Zena Mason To the newly bereaved parent: please know that you’re not alone. I want to share my story of medical termination in Australia. This was extremely hard to write and share. In a world full of supportive people we have certainly felt alone because it’s so taboo and people are scared to talk about anything to do with the loss of a child. Unfortunately, we live in a world where we as humans are judged for what shoes we wear, what house we live in and whether we like boys or girls, so when we had to make a heart-wrenching choice it became apparent […]

There are No Words

Posted on Posted in Hydrocephalus, Induction/L&D, Neural Tube Defects, Spina Bifida, Stories

By Holly “There are no words.” This was a response I received from one of my childhood friends when I told her about losing Heath. I had received so many other responses such as “I am so sorry for your loss” or “we are praying for you and your family” etc. and while those responses were nice, “there are no words” was exactly the response I needed at the time. You see, there are no words when someone loses a baby. There are no words when you receive the life-changing ultrasound results. There are no words when you are faced with a decision to terminate. […]

I Wanted Her So Much

Posted on Posted in Agenesis of the Corpus Callosum, Hydrocephalus, Induction/L&D, Stories, Ventriculomegaly

By Alyssa’s Mom We were trying to get pregnant with our first child. When I missed my period I took a pregnancy test but it was negative. I was bummed. I thought for sure I was pregnant as I had felt constant nausea all week long. A few days later my doctor did a blood test. Lo and behold I was pregnant after all. We were absolutely thrilled!  Our baby was due in September and we could not wait. Our first scare in the pregnancy came at nine weeks when I started bleeding. I thought for sure I had lost the baby. The next morning I had an ultrasound scan […]

Still Relevant

Posted on Posted in Anencephaly, Hydrocephalus, Induction/L&D, Multiple Losses, Neural Tube Defects, Spina Bifida

By MJP We’re the women politicians don’t talk about. Women who were pregnant with wanted and waited for babies, not birth control accidents, not rape, and not “irresponsible.” My story is now 24 years old but still relevant. We always thought we would have three or four children. Baby number one was born in 1985 after an uneventful pregnancy, a healthy boy. In spring of 1988 I had my first miscarriage and was devastated. In 1990 I had a second miscarriage. I was told not to worry, that it was only after a third miscarriage that the doctors would be concerned. A few months later I […]

Rage Over Restrictions

Posted on Posted in D&E, Hydrocephalus, Neural Tube Defects, Spina Bifida

By H. R. The pregnancy was very normal and everything seemed to be going fine. I had the free-cell DNA test and that came back normal, so didn’t feel the need for any second trimester screenings. I do sometimes regret that I didn’t have the second trimester screenings as they might have let me get this information sooner, and maybe the termination would have been easier physically. But I don’t know that, so I’ve had to let that regret go along with so many other regrets as I work through this grieving process. The 20 week level II anatomy scan at the perinatologist’s took a long […]

I Just Miss Her

Posted on Posted in D&E, Hydrocephalus, Neural Tube Defects, Spina Bifida, Stories

Anonymous It took almost two years to conceive our first child, Cade. We had him after seven rounds of clomid and one IUI. I got pregnant with Elise the month after I stopped nursing Cade, and the first time after my period came back. It was so easy. I was considered very low risk for everything and didn’t have my first ultrasound until 20 weeks. I was nervous, but also basking in how “normal” this pregnancy was. I got to celebrate and get nervous about how close in age my children would be (22 months). I was a lot sicker than I was with Cade, and I […]

Little Irish

Posted on Posted in Hydrocephalus, Neural Tube Defects, Spina Bifida, Stories

By A.F. My husband and I were happy to learn that we were expecting another baby. Our little boy was already two, so our kids would be two and a half years apart just as we’d planned. When I was 18 weeks pregnant I took the AFP test. The results came back in two days and they were abnormal, indicating a possible neural tube defect. I really didn’t believe it, so I had the test done again. We got the results back in 2 days that it was abnormal. I didn’t believe it so they redid the test. The results were the same. A week later I […]

Remembering Dr. Tiller’s Kindness

Posted on Posted in Congenital Heart Defects, Hydrocephalus, Termination after 24 weeks

M. K. My story takes place in the year 2000. I was 32 years old and had two older boys from a previous relationship. Jason and I had been married three years and I was pregnant. We were excited and ready to be parents together for the first time. We had selected furniture, car seats, and other items to help us keep our baby comfortable, warm, protected and loved. I took prenatal vitamins, didn’t drink, had never smoked, and avoided sushi, artificial sweeteners, deli meats and cheeses. I had all the usual prenatal tests and everything was normal. Twenty-nine weeks into my pregnancy my OB said I was “carrying […]

Q&A: Can I Choose the Termination Procedure I Want?

Posted on Posted in D&E, Hydrocephalus, Induction/L&D, Neural Tube Defects, Practical Information, Q&A, Spina Bifida, Stories

Have a question for Ending a Wanted Pregnancy? Email us. QUESTION My unborn child has been diagnosed with severe spina bifida with hydrocephalus at week 19 gestation. My husband and I have decided to terminate the pregnancy. The  D&E seems cruel to me. I would like to have early induction and delivery abortion (L&D) but I don’t think they will offer it to me. I think that I would cope and grieve more effectively with this termination method. I want to see my child and say goodbye. Do you have any suggestions?   ANSWER I am very sorry that you are having to go through […]

I Know I Made The Right Decision

Posted on Posted in D&E, Hydrocephalus, Neural Tube Defects, Spina Bifida

Grateful in NYC I was told about this web site by a sister-in-law of a very close friend. Several years ago, she found out that her daughter had severe abnormalities and needed to terminate her pregnancy. I remember how upset and crushed she was, and I could never imagine what she was going through. Then it happened to me. At 16 weeks, I went to the ob/gyn for a regular check up. The doctor recommended that I take the triple screen test. He said that if something was wrong, I would be contacted within two weeks. After almost two weeks, we had not heard anything, […]