D&E, No Fear or Regrets - an abortion for anencephaly

No Fear or Regrets

Posted on Posted in Anencephaly, D&E, Diagnoses, Neural Tube Defects, Stories

I was little more than life support for her and within minutes or possibly hours from birth, she would die, without any sense of me or anything around her. By Sara This is my story of ending a wanted pregnancy. I’m putting in lots of details because it’s what I was looking for when we first decided to terminate, but couldn’t find a story like mine. The Anatomy Scan—The Diagnosis My husband and I and our two-year-old live in Japan. My husband is active duty and got stationed here about three years ago. In late July, I was about 21 weeks along with our second child […]

Termination for spina bifida and chiari malformation

My Sweet Cami

Posted on Posted in D&E, Neural Tube Defects, Spina Bifida, Stories

“I decided to make her baby book and have a necklace made with her would-be birthstone and the letter ‘C’ “ By Megan December 15th was a great day for my husband and I. We heard our daughter’s heartbeat for the first time and my husband was accepted to the police academy all on the same day. Life couldn’t get any better. Then in February we went in for the 20-week ultrasound. The tech was very cold and barely spoke as she took 70 images of our baby, measuring every inch. We figured this was routine and asked if we could know the gender. She […]

Severe spina bifida - Daddy's shoes - "Our gender reveal party was canceled because of the news of severe spina bifida that we got from the specialist. The crushing feeling still haunts me."

Daddy’s Shoes

Posted on Posted in Neural Tube Defects, Spina Bifida

We called several specialists around the country and Dana spent an entire day on the phone with the four big players in the fetal surgery specialty. In some cases, they can do surgery on the baby while still in-utero. All the specialists looked at our case of severe spina bifida and gave our son bleak prognoses.

From my side of the picket link - " Anencephaly was the word the doctor handed to me, scribbled on the back of Avery’s freshly printed ultrasound photo. 200% accurate diagnosis is what he stated when I pleaded with him to double check. "

From My Side of the Picket Sign

Posted on Posted in Anencephaly, Neural Tube Defects, Opinion, Stories

I will never succumb to feeling guilty or selfish for the most selfless decision I’ve ever made. By Carissa Waldner I see you day after day holding up the sign that continually haunts me, “Babies killed here.” I watch as your supporters show up on the weekends and stand with you, holding pictures of fetuses, showcasing the number of days and hours it takes for a human heart to start beating. Your eyes are cold and judgmental. They pierce through me as I drive by. I avert mine day after day, knowing how you’d feel if you knew my story. Every morning I drive past […]

Spina bifida - I received the news that my expectant child, a precious baby boy, had an open spina bifida and Arnold Chari Malformation Type 2. Even as those words roll out my mouth now, I still cannot believe that this was and is my reality, exactly a month ago today.

Malachi, My Angel

Posted on Posted in Neural Tube Defects, Religious Perspectives, Spina Bifida

My husband bought a beautiful bonsai tree as a memento to remember Malachi by and to keep amongst us as a family. I take care of it as I would have taken care of him. by S.A. The day you realise your world as you know it has changed forever is a startling one. One that hits you like a ton of bricks. One when you question how the rest of the world is able to keep moving and functioning, oblivious to your the pain and suffering. That fateful day for me was the 10th November 2016. I received the news that my expectant child, […]

Chloe Fay

Posted on Posted in Hydrocephalus, Induction/L&D, Neural Tube Defects, Spina Bifida, Stories

People are silently grieving, too afraid to let others know what’s going on because they are scared of judgment. By Zena Mason To the newly bereaved parent: please know that you’re not alone. I want to share my story of medical termination in Australia. This was extremely hard to write and share. In a world full of supportive people we have certainly felt alone because it’s so taboo and people are scared to talk about anything to do with the loss of a child. Unfortunately, we live in a world where we as humans are judged for what shoes we wear, what house we live in and whether […]

There are No Words

Posted on Posted in Hydrocephalus, Induction/L&D, Neural Tube Defects, Spina Bifida, Stories

By Holly “There are no words.” This was a response I received from one of my childhood friends when I told her about losing Heath. I had received so many other responses such as “I am so sorry for your loss” or “we are praying for you and your family” etc. and while those responses were nice, “there are no words” was exactly the response I needed at the time. You see, there are no words when someone loses a baby. There are no words when you receive the life-changing ultrasound results. There are no words when you are faced with a decision to terminate. […]

Late Termination in Wichita

Posted on Posted in Induction/L&D, Neural Tube Defects, Spina Bifida, Stories, Termination after 24 weeks, Ventriculomegaly

By Donna My son was my long awaited journey into motherhood. He was my lifeline the day my brother died and I thought the world was ending. He was the glimmer of hope that was offered to family members that horrible week that we had four family members die. He was my everything, and then he was gone. At the end of September 2005, my husband and I found out that we were expecting a child. We were excited to finally start a family. The following week my brother and cousin were killed in a car wreck, then my aunt died from cancer, and my […]

Ella, My Only Girl

Posted on Posted in Hypoplastic Left Heart Syndrome, Neural Tube Defects, Spina Bifida, Trisomy 13 (Patau syndrome)

by D. L. I had just turned 35 and had decided that I wanted another baby. I had three beautiful boys, and had a feeling that if I got pregnant again I would have my little girl. I always wanted a girl. Don’t get me wrong I adore my boys, but I still really wanted a girl. My husband and I argued a lot about the subject because he was done with having kids. We did keep trying though. It didn’t take long and I was pregnant. I was very happy. This was the first pregnancy I really planned. I felt great. I had horrible nausea with the […]

I Wanted Her So Much

Posted on Posted in Agenesis of the Corpus Callosum, Hydrocephalus, Induction/L&D, Stories, Ventriculomegaly

By Alyssa’s Mom We were trying to get pregnant with our first child. When I missed my period I took a pregnancy test but it was negative. I was bummed. I thought for sure I was pregnant as I had felt constant nausea all week long. A few days later my doctor did a blood test. Lo and behold I was pregnant after all. We were absolutely thrilled!  Our baby was due in September and we could not wait. Our first scare in the pregnancy came at nine weeks when I started bleeding. I thought for sure I had lost the baby. The next morning I had an ultrasound scan […]