by JD | Apr 15, 2015 | Stories, Trisomy 13 (Patau syndrome)
Realizing that all the hopes and dreams you had for your unborn child will never come true and having to make the decision to end your unborn baby’s short life is something I’d never wish upon anyone. By Amanda Shoemake Many couples, especially the women, who...
by JD | Mar 7, 2015 | D&E, Trisomy 13 (Patau syndrome)
Her new baby wailed and wailed upstairs while I was left with the silence of my daughter’s ashes in a box in my room. By S.K. I was 20 weeks pregnant when my husband and I went to the hospital for a routine ultrasound. The doctor told us it looked like our baby...
by Amy Collier | Feb 23, 2015 | D&E, Trisomy 13 (Patau syndrome)
We were hit by a huge ice storm hit, and we were stuck waiting an additional ten long miserable days before we could go back to the surgical center. By Katie When I was around 14 weeks pregnant with my second child, I started having severe pains. We went to the...
by JD | Feb 22, 2015 | Omphalocele, Stories, Trisomy 13 (Patau syndrome)
The odds had been against us from the beginning of this pregnancy. We just couldn’t take the risk. By J. C. I’ve started to write this story about five times but never made it more than a few sentences. Fortunately my genetic counselor gave me the link to...
by Amy Collier | Jun 10, 2014 | Alobar Holoprosencephaly, Stories, Trisomy 13 (Patau syndrome)
We went home and sat on the couch for a week, crying and holding each other. By Jess 311 I couldn’t believe it when the home pregnancy test was positive. I thought surely it would not happen so soon. It had only been two months since we started trying. I...
by JD | Nov 18, 2012 | Diagnosis Information, Trisomy 13 (Patau syndrome)
Trisomy 13, also called Patau syndrome is a chromosomal disorder caused by a third copy of chromosome 13. It causes severe neurological and heart defects; approximately 80% of children born with this defect die shortly after birth. Infants born with trisomy 13 often...
