The Worst Rollercoaster Ride

Not Mild

This is Not Mild By Anna As you read this story you might notice that the tone I’ve chosen is a little less conventional than most. This is the way I want to share my story: with a dash of humour, curse words, and sarcasm. Grab a glass of wine, unless you are fortunate enough to be pregnant, then (hiding my resentment and in all seriousness) I am happy for you—non-alcoholic wine sucks so enjoy your water, here is the story of my first pregnancy. Synopsis: I was told baby would survive, then not survive, then survive(!), then not survive…so my full story is long. […]

Kind, Compassionate Care When We Needed It Most

Abortion for CDH Congenital Diaphragmatic Hernia

So much information was being explained to us. But I only heard the scary keywords: deformed, suffering, uncertainty of survival, termination. This was the most difficult news of our life. By Lillian Adam and I have been together for eight years, happily married for more than six, with two beautiful, healthy and extraordinarily happy and capable daughters. When we found out in June that I was pregnant with our third child, we were overjoyed. My pregnancy felt like all the others—morning sickness most of the day, exhaustion, lots of heartburn, and so much to look forward to. We were thrilled to add more love and […]

Not Written in the Stars

By R.M. Two years ago we were expecting our third child. After a missed miscarriage at 13 weeks earlier in the year, we had gotten through what we thought was the risky part. As we inched toward our third trimester, we were excited and a little nervous to bring another baby into our lives. The 20-week ultrasound turned everything upside down. I noticed it right away on the screen: A large, dark spot in the baby’s brain. We were told to call our midwife. She said it may be nothing, or a cyst, or an aneurism. We saw a specialist who told us it was a brain […]

No Known Cases

By H. My husband and I are currently waiting to have our termination in another three days. I am will be 18 weeks pregnant when I have the procedure. At our 12-week scan we learned that our baby had a cystic hygroma which could indicate a heart defect, a chromosomal abnormality or an inherited genetic disorder. A few days later we had a specialised scan to diagnose the problem. The technician was unable to confirm anything. What they could see looked fine in regards to heart, size of baby, etc. They offered us a termination at this point, but said there was still a 5-10% chance the baby could be born completely […]

Walks with God

By R. V. I had always wanted children very much, and went through the beginning of fertility treatments with my first husband. After 10 years, that marriage ended. A few years later, I met the love of my life and current husband. He had two children already, 10 and 12 years old, but agreed to try once more so I could experience the joys of motherhood. Finally at age 40 I got pregnant. There was never a more desired child. At three months I went for an ultrasound. They told me that I needed to come back in a few weeks because they couldn’t get an accurate view […]

I Terminated a Planned Pregnancy

By Sara Garafalo I always wanted to be a mom. But after my (now 5 year old) daughter was born, I began to realize all that was involved. The sleepless nights and never-ending crying were the least of it. As someone with severe OCD (and not the hand washing kind you see on TV), I began to have endless anxiety over every move my daughter made. Every rash was meningitis, every cough was pneumonia and, later on, every repetitive movement was a tic. My husband and I always said we’d have two and he really wanted a boy. I believe it had something to do […]

What is MMIHS (Berdon Syndrome)?

Megacystis microcolon intestinal hypoperistalsis syndrome (MMIH Syndrome, MMIHS, or Berdon Syndrome) is a rare prenatal diagnosis involving a dilated urinary bladder which causes massive abdominal distension, microcolon and decreased or absent intestinal function. MMIHS is an autosomal recessive disorder most often occurring in females. The prognosis and life expectancy of this generally fatal disease remains poor. Death is mainly caused by sepsis, malnutrition or multiple organ failure. This diagnosis should not be confused with prune belly syndrome or the much milder chronic idiopathic intestinal pseudo-obstruction, in which megacystis is also present. To learn more visit: Orphanet—Megacystisis Microcolon Intestinal Hypoperistalsis Radiopaedia —Megacystisis Microcolon Intestinal Hypoperistalis Rare Diseases—MMIH Syndrome   […]

My Little Lion

By Jessica C. Our son was two and we were ready to add on to our family. I became pregnant after our first try and we were very excited. I was a little nervous about my “advanced age” as I was 36 going on 37, but otherwise I felt good. We told our son about the baby, and asked him whether he thought it was a boy or a girl. He told us it was a lion. Later we learned our baby was another boy and our son’s prediction didn’t falter—our baby was a boy lion. We’d passed all the chromosomal tests for my “advanced age” and appeared to be in the clear. Once the first trimester […]

An Ordinary Mum

Eliza’s Mum I should be 33 weeks pregnant. I should be huge, uncomfortable, and thinking about having a nap right about now. But I’m quite slim, slender even. It doesn’t matter anymore that I’m drinking coffee and eating a toasted ham and cheese sandwich. Because I’m not pregnant. You know when you’re watching a film and the star collapses because they’ve had a huge shock and you can see how devastated they are; well, that was me, only I’m not a star and I’m not in a film. I’m just an ordinary mum. I worry about getting the washing dry in winter, and how to […]

The Chromosomal Lottery

Sad Girl There comes a time in your life when you feel like you are mature and ready enough to start your own family. My husband and I felt that nothing will make us happier than having a little addition to our family. It didn’t take us long until we were happily pregnant. We told our parents and a few other members of our family. I was a little concerned about sharing the news so early because you never know what might happen. Unfortunately my concerns were correct: That pregnancy miscarried before the end of the first month. Full of disappointment but with great hopes, we started working on a […]