Ethan’s Story

Posted on Posted in Congenital Heart Defects, D&E, Religious Perspectives, Stories, Trisomy 21 (Down syndrome)

By C.J. This is Ethan’s story–my youngest son. It started out much like I thought for a third pregnancy. I have two healthy children, a girl, age five, and a boy, age three. I was sick with morning/all day sickness. When you are that sick and you have been through it twice before, it is hard to be too excited, but my husband and children were over the moon about the new baby. My son kept looking at my stomach and saying “is it getting bigger?” While my daughter began kissing my growing belly and writing “I love you” cards for her new sibling. My […]

Nova, our shining star

Posted on Posted in Congenital Heart Defects, D&E, Stories

By A.N. Pregnancy is supposed to be a joyous experience. With a history of two prior miscarriages, we waited until 13 weeks to begin to share the news with people beyond our immediate family. We never did an official announcement but word of mouth travels fast. After 13 weeks, anyone who was in our close circle of friends and family knew we were expecting a little girl. Our family was excited for the addition; my daughter was thrilled that she would have a sister. Nova was our baby’s unofficial name, our shining star. You have big dreams for your baby, before he or she ever graces this earth […]

Compassion & Courage

Posted on Posted in Congenital Heart Defects, Hypoplastic Left Heart Syndrome

By Monica Palase I just read Kate’s story and it was amazing. My husband and I had our first son, CJ, on August 12,1991. He was born with HLHS. At that time, they were just starting the surgery to correct this and he underwent open heart surgery at 10 days old. We lost our precious angel on November 16, 1991. I was set on not having anymore children, but my CJ told me not to give up. I was told when I got pregnant again that I would have the option of aborting the pregnancy if this child had the same condition. It is not something […]

Baby’s Boots

Posted on Posted in Congenital Heart Defects, Hypoplastic Left Heart Syndrome, Induction/L&D, Stories

By L. B. I am 21 weeks, two days pregnant and have decided to terminate my pregnancy. This is my first pregnancy. I had wanted to conceive for several years, but my husband was not ready. Then for Christmas this year, he surprised me with a pair of baby Timberland® boots. It was his signal to me that he was finally ready for fatherhood. The first time we tried to conceive, I got pregnant. I couldn’t believe how easy it was. I was nauseated and tired the first trimester, but nothing out of the ordinary. I am very athletic and continued running. During my eighth week of pregnancy I […]

Remembering Dr. Tiller’s Kindness

Posted on Posted in Congenital Heart Defects, Hydrocephalus, Termination after 24 weeks

M. K. My story takes place in the year 2000. I was 32 years old and had two older boys from a previous relationship. Jason and I had been married three years and I was pregnant. We were excited and ready to be parents together for the first time. We had selected furniture, car seats, and other items to help us keep our baby comfortable, warm, protected and loved. I took prenatal vitamins, didn’t drink, had never smoked, and avoided sushi, artificial sweeteners, deli meats and cheeses. I had all the usual prenatal tests and everything was normal. Twenty-nine weeks into my pregnancy my OB said I was “carrying […]

A Gray Area

Posted on Posted in Congenital Heart Defects, Induction/L&D, Stories, Uncategorized

By N.F. We were going to find out at 20 weeks…is it a boy or a girl? This is our second child and we have a beautiful little girl. We are hoping for a healthy boy, but a healthy girl would be wonderful too! We were granted neither. A boy. But not healthy. Not even close. The ultrasounds confirmed that our son had multiple anomalies. I had never heard the word and wished I never had. We spent the next two weeks racing from one doctor’s appointment to the next, just trying to get some hopeful news. We never got any answers. Just that our […]

Choosing Compassion

Posted on Posted in Congenital Heart Defects, Hypoplastic Left Heart Syndrome, Induction/L&D, Stories, Trisomy 21 (Down syndrome)

By Grace O. A mother, who found out her unborn baby had Hypoplastic Left Heart Syndrome (HLHS), decided to carry him to full term. But she did not have him undergo the series of surgeries that might have saved his life. She said, “You must believe that the decisions you are making are the right ones for you, your baby, and your family; founded in love, they cannot be wrong.” Although my choice was different from hers, I agree with her statement. When it comes to parental decisions, and there is no one-size-fits-all correct choice. It is all too easy to judge another’s choice or […]

Parachutes

Posted on Posted in Congenital Heart Defects, Hypoplastic Left Heart Syndrome, Trisomy 21 (Down syndrome)

Grace O. About nine months after making my heartwrenching choice to end my 20-week pregnancy due to a combination Hypoplastic Left Heart Syndrome and Down syndrome, I conceived again. That was a tough decision, one I had to make all over again each month that I did not get pregnant. Getting pregnant again is not a decision I would have made if abortion had not been legal. After what we’d been though, it was terrifying to even consider trying again. I now understood only too well that poor prenatal diagnosis wasn’t something that only happened to “other people.” The best prenatal behavior, medical care or […]

Cupid’s arrow

Posted on Posted in Articles, Congenital Heart Defects, Hypoplastic Left Heart Syndrome, Stories, Trisomy 21 (Down syndrome)

Grace O. Few things irritate me more than people griping about how much they hate Valentine’s Day. “It’s just a Hallmark holiday,” they whine, “Why can’t people say I love you every day instead of waiting for Valentine’s Day? I hate chocolates. I never have a date. Roses are a waste of money. It’s stupid.” These petty complaints crop up every year. And I have to stuff my response, resist the temptation to stun the complainers out of their self-absorbed grousing about how tough it is for them to tolerate another Valentine’s Day. So I let them sulk about romance, or polish their tiresome hipster cred […]