Q&A: Would it have made me a better person?

Posted on Posted in Omphalocele, Opinion, Q&A, Stories, Trisomy 21 (Down syndrome)

Have a question for Ending a Wanted Pregnancy? Email us. QUESTION I terminated my pregnancy following a poor prenatal diagnosis of omphalocele. Recently, I read a memoir called Expecting Adam by Marsha Beck, the mother of a child with Down syndrome who learned of his condition prenatally and chose to continue her pregnancy. It’s making me wonder if a better person would make a different choice than I did. After reading it, I’ve started to second-guess my decision. What if we’d been more willing to change our priorities? If we’d readjusted our life goals? What if I had continued the pregnancy? Would my living children grow to become stronger, gentler […]

Q&A: Why Not Just Scan for Defects Earlier?

Posted on Posted in D&E, Induction/L&D, Omphalocele, Opinion, Q&A, Stories

Have a question for Ending a Wanted Pregnancy? Email us. QUESTION Why have an abortion so late? Why not just scan for defects earlier? A 12-week scan can pick up most issues. I had a scan at 12 weeks and discovered our baby had a giant omphalecele (all his internal organs were in a sack on the outside of his body). We were told his lungs and heart would not develop properly and he had a 1 in 10,000 chance of surviving to the age of two. Because nerve endings don’t develop until about the 18 week mark, we made the heartbreaking decision to end the pregnancy […]

What is Omphalocele?

Posted on Posted in Omphalocele

Omphalocele is an abdominal wall defect which causes the liver, intestines or other organs to develop outside of the body. In the first 6 to 10 weeks of a normal pregnancy, the intestines push out from the abdomen into the umbilical cord but by week 11 the intestine move back into the abdomen. An omphalocele happens when this fails to occur. In a small omphalocele only some of the intestines develop outside of the abdominal wall. But with a large omphalocele many organs may have developed outside of body, protected only by a thin, transparent sac. Infants born with an omphalocele may not develop an abdominal cavity adequate to […]

Trusting My Instincts

Posted on Posted in Omphalocele, Stories, Trisomy 13 (Patau syndrome)

By J. C. I’ve started to write this story about five times but never made it more than a few sentences. Fortunately my genetic counselor gave me the link to this web site, a godsend, when we got the results from the amniocentesis. I’ve navigated through the site many times since. My family, including our wonderful two-year-old son, were on vacation in Florida. I had suspected that I may be pregnant, but wasn’t sure. The hormones were flaring and I was starving on the drive there, but still, I questioned myself. I took the pregnancy test in the bathroom of our vacation condo and got to announce to […]

Our Angel’s Story

Posted on Posted in D&E, Omphalocele, Stories

By B.T. After two years of trying, and beginning to doubt we’d ever be parents, we were finally expecting. We’d never been happier. We told the world we were pregnant, no fear involved. We recorded video of our first ultrasound and showed everyone the rapid beat of a tiny heart that meant the beginnings of our family. At 13 weeks, 6 days the next ultrasound was scheduled. My husband Brian was at work, but I didn’t mind going alone. I felt good, and certain that everything was going to be OK. During the ultrasound, the technician showed me that the heartbeat was slightly slower than at my last appointment. She […]