Q&A: How Do I Comfort Them?

Posted on Posted in Q&A, Trisomy 21 (Down syndrome), Twin-toTwin Transfusion Syndrome (TTTS)

Have a question for Ending a Wanted Pregnancy? Email us. QUESTION I’m not sure if you can help me but, at this stage, I’m open to anything. My brother and his girlfriend, who is 40, were expecting twins. After discovering that they were monochorionic twins, Twin-to-Twin Transfusion Syndrome (TTTS) was diagnosed. Based on a decision to aggressively treat the TTTS, they were advised to undergo prenatal screening before embarking on any treatment program. Today, the FISH results of their CVS have indicated Trisomy 21 in 80% of the cells resulting in a diagnosis of Mosaic Down Syndrome. On top of this, the one baby has indications […]

My Precious Twins

Posted on Posted in Stories

By Emily I had tried for four years to get pregnant, and had one previous miscarriage. When I found out I was pregnant with twins, I was happy but nervous. I tried to reassure myself all the time that everything would be OK as long as I took care of myself. When I met the three-month mark I allowed myself to finally feel content. My contentment evaporated the very next day when I learned that my husband was a carrier of the cystic fibrosis gene. This meant there was a 25 percent chance that each of my twins would have this fatal disease. I was so nervous about […]

In the Stillness of the Night

Posted on Posted in Induction/L&D, Stories, Trisomy 18 (Edward's syndrome)

By J.M. My second husband and I had been trying for another baby for nearly eight years, including three rounds of IVF. Our marriage had reached the breaking point. Male Infertility, we were told. Three weeks before Christmas, Scott announced that we would separate, effective immediately. Within days, our house was put up for sale I struggled to come to terms with the finality of losing the love of my life and starting again on my own. The following few weeks were ghastly as I tried to cope with my world falling apart. On Boxing Day Scott asked me to move out of the house as anger and […]

Going Home Empty Handed

Posted on Posted in Induction/L&D, Stories

By B.B. I was barely 24, single and living with my parents when I found out I was pregnant. I wasn’t certain if I was ready to have children and ambivalent about continuing the pregnancy. My doctor knew all this, and she made a weird face while performing the ultrasound. She said she saw two separate heartbeats. I was carrying twins. I was stunned. My older sister has a set of twin girls; what were the odds of both of us having twins? I knew right then that my choice would be to keep them. My doctor told me that carrying twins automatically put me at high risk, so […]

What is Twin-to-Twin Transfusion Syndrome (TTTS)?

Posted on Posted in Stories

Twin to twin transfusion syndrome (TTTS) occurs only with identical twins or higher order multiples who share a single placenta. It takes place when there is a connection in the two babies’ blood vessels of their shared placenta. One twin, called the “recipient” has greater blood flow and the other, called the “donor” has inadequate blood flow.  Another name for twin-to-twin transfusion syndrome chronic inter-twin transfusion syndrome. In severe cases the fetuses be of significantly different size; the “recipient” twin may have congestive heart failure and polyhydramnios; the “donor” twin may suffer oligohydramnios. Prenatal treatments and outcomes for TTTS have improved in recent years.   For more information on Twin-to-Twin […]

Trusting My Instincts

Posted on Posted in Omphalocele, Stories, Trisomy 13 (Patau syndrome)

By J. C. I’ve started to write this story about five times but never made it more than a few sentences. Fortunately my genetic counselor gave me the link to this web site, a godsend, when we got the results from the amniocentesis. I’ve navigated through the site many times since. My family, including our wonderful two-year-old son, were on vacation in Florida. I had suspected that I may be pregnant, but wasn’t sure. The hormones were flaring and I was starving on the drive there, but still, I questioned myself. I took the pregnancy test in the bathroom of our vacation condo and got to announce to […]

When We Create Meaning

Posted on Posted in Articles, D&E, Multiple Losses, Opinion, Stories, Twin-toTwin Transfusion Syndrome (TTTS)

By Tova Gold About six weeks after the girls died, I thought I would die from my grief. The entire experience of pregnancy and loss felt like a bad dream that I’d imagined. It’s because I never met them. I had no concrete evidence they’d existed. I chose to be “put under” for the delivery, because I was scared, and when I woke up they were gone, no longer in my body. It wasn’t until after that I realized how much I yearned to know what they’d looked like. How I ached for the opportunity to hold my two daughters at the same time, looking […]