by JD | Mar 8, 2015 | Induction/L&D, Thanatophoric Dysplasia
My journal entries leading up to the day of my termination for thanatophoric dysplasia. By Caden’s Mother January 14 Everyone gets theirs. I went to the doctor today for what I thought would be one of many routine visits. He pulled a piece of paper out of...
by JD | Sep 8, 2014 | Induction/L&D, Stories, Thanatophoric Dysplasia
I know many believe that he is elsewhere looking over us. I used to believe things like this, before it was my son who died. By Jeanmarie Some days are OK. Not great but OK. I love my husband and I love my living son, Alexander. But that doesn’t change that my Gabriel...
by JD | Feb 9, 2013 | Thanatophoric Dysplasia
Making peace with having “just one” child can be very healthy. By Jennifer The decision to end my pregnancy in 2006 came two days after my now twelve year old daughter, Hannah’s, sixth birthday. She was excited for the arrival of her baby sister, Emily. At...
by Amy Collier | Nov 18, 2012 | Diagnosis Information, Thanatophoric Dysplasia
Thanatophoric dysplasia is Latin for “death bearing malformation.” It is a skeletal disorder and a most severe form of dwarfism. Infants born with this condition are usually stillborn or die from respiratory failure shortly after birth. There are two types...
by JD | May 9, 2012 | Induction/L&D, Stories, Thanatophoric Dysplasia
The incidence is approximately 1 in 10,000 births and is the most common lethal bone dysplasia. By Doug I only wanted a healthy child (ten fingers and ten toes was what I always told everyone that asked, and I meant it) but my wife was really hoping for a girl. You...
