D&E

A Terrible Shade of Grey

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hypoplastic left heart is a grey diagnosis

“Your baby has Hypoplastic Left Heart Syndrome. The left side of the heart did not develop. This condition does not have a cure.” A Prenatal Diagnosis of Hypoplastic Left Heart Syndrome I have always been a planner. Before making any decision, I evaluate the pros and cons and research the risks and associated probabilities. When my husband and I decided to get pregnant, I knew that, according to the CDC, 6% of women struggle with infertility. I knew it could take multiple months to conceive. When we got pregnant on the first try, I also knew that 1 in 4 pregnancies end in miscarriage. I […]

Hypoplastic Left Heart Syndrome

What Nobody Tells You

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What nobody tells you - Another 8 long days later, as I was getting ready for our appointment with the fetal cardiologist, our genetic counselor called with the amnio result. It had come back with a diagnosis of something called Mosaic Trisomy 13.

Prenatal Diagnosis: Mosiac Trisomy 13 and HLHS Nobody tells you when you’re trying to get pregnant that things can go wrong and it could end badly. By Gina McGarey I didn’t want kids until I was in my 30s. This past summer we started trying. Fast forward about 4 months and we found out I was pregnant. We were both super excited and planned all of these different ways to tell our parents, siblings, and friends (I have some amazing videos of us telling most of them). This would be the first grandchild for all of our parents and the first great-grandchild for half of […]

Hypoplastic Left Heart Syndrome

The Hardest and Easiest Decision

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Trisomy 18 - At 23 weeks pregnant, we said goodbye to Ava.

I felt that if I carried her to term it would be for my benefit, not hers. By Ava’s Mom Today my mom called me about my cousin and his wife who are expecting their first baby. We are very happy for them. Their baby is breech, so they’ve  scheduled a c-section which will take place on my second child’s due date. It hit me that I should be planning a first birthday party. It also hit me that for my cousin’s wife, the worst thing happening is she can’t have the vaginal birth she wanted. I have had three children vaginally, but only two […]

Hypoplastic Left Heart Syndrome

Ella, My Only Girl

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by D. L. I had just turned 35 and had decided that I wanted another baby. I had three beautiful boys, and had a feeling that if I got pregnant again I would have my little girl. I always wanted a girl. Don’t get me wrong I adore my boys, but I still really wanted a girl. My husband and I argued a lot about the subject because he was done with having kids. We did keep trying though. It didn’t take long and I was pregnant. I was very happy. This was the first pregnancy I really planned. I felt great. I had horrible nausea with the […]

Hypoplastic Left Heart Syndrome

Willow, Our “Back to the Future” Baby

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By Mrs. E. Getting the News I was so excited when I saw that my pregnancy test was positive! It was the weekend before Valentine’s day, and I decided to surprise my husband with a “My First Jaguars Football Book” which I’d bought a long time ago and saved just for this day. Giddy and bursting with happiness, I gift wrapped the book along with my positive pregnancy test. When he got home from work I said I had an early Valentine’s gift for him. He seemed a little confused by his early gift. I was smiling ear to ear. He opened the gift and eyed the test stick, still baffled. Before he […]

Congenital Heart Defects

Compassion & Courage

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By Monica Palase I just read Kate’s story and it was amazing. My husband and I had our first son, CJ, on August 12,1991. He was born with HLHS. At that time, they were just starting the surgery to correct this and he underwent open heart surgery at 10 days old. We lost our precious angel on November 16, 1991. I was set on not having anymore children, but my CJ told me not to give up. I was told when I got pregnant again that I would have the option of aborting the pregnancy if this child had the same condition. It is not something […]

Congenital Heart Defects

Baby’s Boots

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By L. B. I am 21 weeks, two days pregnant and have decided to terminate my pregnancy. This is my first pregnancy. I had wanted to conceive for several years, but my husband was not ready. Then for Christmas this year, he surprised me with a pair of baby Timberland® boots. It was his signal to me that he was finally ready for fatherhood. The first time we tried to conceive, I got pregnant. I couldn’t believe how easy it was. I was nauseated and tired the first trimester, but nothing out of the ordinary. I am very athletic and continued running. During my eighth week of pregnancy I […]

Congenital Heart Defects

Choosing Compassion

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By Grace O. A mother, who found out her unborn baby had Hypoplastic Left Heart Syndrome (HLHS), decided to carry him to full term. But she did not have him undergo the series of surgeries that might have saved his life. She said, “You must believe that the decisions you are making are the right ones for you, your baby, and your family; founded in love, they cannot be wrong.” Although my choice was different from hers, I agree with her statement. When it comes to parental decisions, and there is no one-size-fits-all correct choice. It is all too easy to judge another’s choice or […]

Congenital Heart Defects

Parachutes

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Happy rainbow baby

My happy rainbow baby at 6 months. Why my “rainbow baby” owes his existence to legal abortion Grace O. About nine months after making my heartwrenching choice to end my 20-week pregnancy due to a combination Hypoplastic Left Heart Syndrome and Down syndrome, I conceived again. That was a tough decision, one I had to make all over again each month that I did not get pregnant. Getting pregnant again is not a decision I would have made if abortion had not been legal. After what we’d been though, it was terrifying to even consider trying again. I now understood only too well that poor […]