by JD | Oct 10, 2019 | D&E, Hypoplastic Left Heart Syndrome
“Your baby has Hypoplastic Left Heart Syndrome. The left side of the heart did not develop. This condition does not have a cure.” A Prenatal Diagnosis of Hypoplastic Left Heart Syndrome I have always been a planner. Before making any decision, I evaluate the...
by Amy Collier | May 26, 2017 | Hypoplastic Left Heart Syndrome, Trisomy 13 (Patau syndrome)
Prenatal Diagnosis: Mosiac Trisomy 13 and HLHS Nobody tells you when you’re trying to get pregnant that things can go wrong and it could end badly. By Gina McGarey I didn’t want kids until I was in my 30s. This past summer we started trying. Fast forward...
by JD | Apr 20, 2017 | Hypoplastic Left Heart Syndrome, Stories, Trisomy 18 (Edward's syndrome)
I felt that if I carried her to term it would be for my benefit, not hers. By Ava’s Mom Today my mom called me about my cousin and his wife who are expecting their first baby. We are very happy for them. Their baby is breech, so they’ve scheduled a...
by JD | Dec 16, 2015 | Hypoplastic Left Heart Syndrome, Neural Tube Defects, Spina Bifida, Trisomy 13 (Patau syndrome)
I now have four boys that I love to pieces, but a daughter I think of every day and wish I had in my life. by D. L. I had just turned 35 and had decided that I wanted another baby. I had three beautiful boys, and had a feeling that if I got pregnant again I would have...
by JD | Oct 25, 2015 | Hypoplastic Left Heart Syndrome, Induction/L&D, Stories
It hurt terribly to know that our “Back to the Future” baby had no future at all. By Mrs. E. Getting the News I was so excited when I saw that my pregnancy test was positive! It was the weekend before Valentine’s day, and I decided to surprise my husband with a...
by JD | May 3, 2015 | Congenital Heart Defects, Hypoplastic Left Heart Syndrome
My heart goes out to each and every parent in your group for having the compassion and courage to put the thought of their child’s life, or lack of, before their desires. By Monica Palase I just read Kate’s story and it was amazing. My husband and I had...
