Trisomy 21 (Down syndrome)

Beautiful Child of Heaven

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Miyo’s Mother I called my baby Miyo Lani because it means “beautiful child of heaven“ in Japanese. It just seemed appropriate. I feel he was a boy—although I don’t know for sure. Baby Miyo’s risk of Down syndrome was 1:7. He had no nose and a heart defect. My womb lays back which prevented me from having CVS testing. We would have had to endure the long wait for an amnio, which I couldn’t bring myself do. As his mother, I knew it wasn’t fair to ask him to face this world and all its cruelties; life is hard enough when you’re healthy. The pain we went […]

Practical Information

Q&A: Are My Amnio Results Accurate?

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The amnio is between 99.4% and 100% accurate. Have a question for Ending a Wanted Pregnancy? Email us. QUESTION We just received our amnio results and were given the unexpected news that our baby girl is positive with Trisomy 21. I have heard so many stories that others were prenatally diagnosed with a Down syndrome baby, and when they went full-term with the pregnancy their baby was fine. I want to be sure there were no mistakes in the lab. Am I just being paranoid?” ANSWER I’m really sorry that you’ve received a prenatal diagnosis of Trisomy 21. Unfortunately, the happy-ending stories we hear about “wrong” prenatal test results are […]

D&E

The Waiting Room

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By Eileen Like most parents, I never thought I would need to make this decision. While it has been explained to you that there is the possibility something could be wrong, it isn’t something you truly consider. I was 37 years old when I found out I was pregnant. My husband and I were both shocked with the news. We had both been married before. His daughter was 16, my daughter was 10 and my son 7. We did not plan on having anymore children but soon became excited about that news. Our 16 year old wasn’t much interested with idea of a new baby […]

D&E

Cynthia’s Story, Part IV: Recovery, Grief & Decisions

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By Cynthia E. Recovery, Grief & Decisions Editor’s note: This part four a four-part series. It is a brave and unflinchingly honest story involving a rare medical emergency during a clinic D&E, and we applaud the author for her courage in sharing it, and offer our condolences on the loss of her baby and her fertility. Too uncomfortable from surgery to sleep in a bed, I spent several sleepless nights in the Lazy-Boy, crying. I would think about the surgery and how terrible the pain was. I would think about the doctor. Rage would come over me. Why did he not stop? I would think about how I could not give […]

D&E

Cynthia’s Story, Part III: ER, Emergency Surgery & Anger

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By Cynthia E. ER, Emergency Surgery & Anger Editor’s note: This part three of a four-part series. It is a brave and unflinchingly honest story involving a rare medical emergency during a clinic D&E, and we applaud the author for her courage in sharing it, and offer our condolences on the loss of her baby and her fertility. The ambulance arrived and they asked if I could move to the gurney. I asked the nurse. Can I? They moved me to the gurney and put me in the ambulance. I could see judgment in the paramedic’s eye. One of those looks like, if you hadn’t been such a bad person, […]

D&E

Cynthia’s Story, Part II: Clinic, Protesters & Disaster

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By Cynthia E. Clinic, Protesters & Disaster Editor’s note: This part two of a four-part series. It is a brave and unflinchingly honest story involving a rare medical emergency during a clinic D&E, and we applaud the author for her courage in sharing it, and offer our condolences on the loss of her baby and her fertility. The clinic warned me that there would be protesters but that they could not come onto the property. We nearly struck one when we were pulling onto the premises, and realized they were deliberately walking back and forth across the driveway, trying to block it. In the parking lot a lady yelled at us. […]

D&E

Cynthia’s story, Part I: Pregnancy, Diagnosis & Decision

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By Cynthia E. Pregnancy, Diagnosis & Decision Editor’s note: This part one of a four-part series. It is a brave and unflinchingly honest story involving a rare medical emergency during a clinic D&E, and we applaud the author for her courage in sharing it, and offer our condolences on the loss of her baby and her fertility. As my second pregnancy progressed, I worried how I would handle two children. I’d had a c-section and struggled with breastfeeding. How could I go through all that again, but this time with a toddler, too? I had found the only doctor around that would do VBAC (Vaginal Birth After Cesarean). I […]

Stories

I Knew it was Over

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By G. P. I don’t know how I am going to be able to write this story. I don’t know how to put into words the enormous shock, heartbreak and horror I feel at the loss my most hoped for, most wanted baby. I still can’t believe that my baby is gone, which seems crazy, as it is nearly 11 weeks now since my baby and I left each other. It took nine months for my husband and I to conceive our baby. All the experts tell you that if you conceive within a year, you are doing well. But when you love your husband with all your […]

Congenital Heart Defects

Choosing Compassion

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By Grace O. A mother, who found out her unborn baby had Hypoplastic Left Heart Syndrome (HLHS), decided to carry him to full term. But she did not have him undergo the series of surgeries that might have saved his life. She said, “You must believe that the decisions you are making are the right ones for you, your baby, and your family; founded in love, they cannot be wrong.” Although my choice was different from hers, I agree with her statement. When it comes to parental decisions, and there is no one-size-fits-all correct choice. It is all too easy to judge another’s choice or […]